DATES TO BE DETERMINIED!
3rd Annual Kick for a Cure 6 v 6 Soccer Tournament
2009 San Diego, California
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2008 Kick for a Cure Brochure

 

PARENT PROJECT MUSCULAR DYSTROPHY’S ANNUAL CONFERENCE

WHAT IS UNIQUE ABOUT PPMD’S ANNUAL CONFERENCE?

  • PPMD hosts the only conference in the United States focused solely on DMD. 
  • PPMD brings together experts in the DMD medical community to inform, educate and participate with families and young men with DMD.
  • The Annual Conference is organized to provide detailed information about research, treatment and care. 
  • Recently, the Annual Conference has brought together more than 260 families and 38 DMD experts from AROUND THE WORLD.

WHAT DOES THE PPMD CONFERENCE ACCOMPLISH?

Examples of what the DMD community now knows with the help of PPMD’s Annual Conference:

  • Steroids are now considered the gold standard in DMD treatment and care
  • There is a consensus that early intervention is preferred
  • Physical therapy for DMD must involve aggressive stretching of the tendons, but not strength building
  • Eccentric contractions are now known to be damaging to muscle in DMD
  • There is now respiratory consensus
  • ACE inhibitors can help prevent or delay cardiac problems
  • There is increased knowledge about bone health

For more information about the PPMD Conference please click here.

 

 



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